It is important to diagnose and treat children with PAH early because of their poor prognosis if they are left untreated. It is also vital that children are referred to a specialist centre that has experience with PAH and pediatric patients as soon as possible. The introduction of new therapeutic strategies has improved prognosis for PAH in children, even though a cure is still not possible.
Children typically undergo a diagnostic approach similar to that used for adults as described in the “How is PAH diagnosed”.

Once a diagnosis of PAH in children has been confirmed, each patient requires a unique management strategy, and patients should be carefully monitored with regular follow-up visits. This individual approach is essential because children with PAH are a vulnerable and heterogeneous patient population; infants, small children and adolescents grow and develop at different paces. Their pulmonary vasculature, for example, is particularly susceptible to change during growth.

 

US RESIDENTS

Please note that the information contained in this section of the website is not intended for US residents. Please visit our US webpage.

Please note that the information contained in this section of the website is not intended for US residents. Please visit our US webpage.

Counselor- PAH Pathways 

 

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