The following websites may be of interest. Please note that any views expressed on these sites are those of the site originators and are not necessarily endorsed by Actelion:

 

PATIENT ORGANISATIONS

Denmark
Sjældne Diagnoser / Rare Disorders Denmark

France
Vaincre Les Maladies Lysosomales

Germany
Niemann-Pick Self-help Group

Italy
Niemann-Pick Association

UK
Niemann-Pick Disease Group

SCIENTIFIC AND MEDICAL SOCIETIES

European Organisation for Rare Diseases (EURORDIS)

European Study Group on Lysosomal Diseases (ESGLD)

Lysosomal Disease Network

Orphanet

National Organization for Rare Disorders (NORD)

Society for the Study of Inborn Errors of Metabolism (SSIEM)

US RESIDENTS

Please note that the information contained in this section of the website is not intended for US residents. Please visit our US webpage.

Please note that the information contained in this section of the website is not intended for US residents. Please visit our US webpage.

Related Links