Further information

The following websites may be of interest. Please note that any views expressed on these sites are those of the site originators and are not necessarily endorsed by Actelion:


Denmark
Sjældne Diagnoser / Rare Disorders Denmark (Denmark)
www.raredisorders.dk 

France
Vaincre Les Maladies Lysosomales (France)
www.vml-asso.org

UK
Gauchers Association (UK)
www.gaucher.org.uk

National Tay-Sachs and Allied Diseases Association, Inc. (UK)
www.NTSAD.org

US 
National Gaucher Foundation, Inc. (US)
www.gaucherdisease.org

National Institute of Neurological Disorders and Stroke (NINDS)
www.ninds.nih.gov

Hide & Seek Foundation for Lysosomal Disease Research (US)
www.hideandseek.org

March of Dimes Birth Defects Foundation (US)
www.marchofdimes.com

Children’s Gaucher Research Fund (US)
www.childrensgaucher.org

National Organization for Rare Disorders (NORD) (US)
www.rarediseases.org

 
 
 
 

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