The following websites may be of interest. Please note that any views expressed on these sites are those of the site originators and are not necessarily endorsed by Actelion:
Patient organisations
Denmark
Sjældne Diagnoser / Rare Disorders Denmark
www.raredisorders.dk
France
Vaincre Les Maladies Lysosomales
www.vml-asso.org
Germany
Niemann-Pick Self-help Group
www.niemann-pick.de
Italy
Niemann-Pick Association
www.niemannpick.org
UK
Niemann-Pick Disease Group
www.niemannpick.org.uk
USA
Ara Parseghian Medical Research Foundation
www.parseghian.org
National Niemann-Pick Disease Foundation
www.nnpdf.org
Scientific and medical societies
European Organisation for Rare Diseases (EURORDIS)
www.eurordis.org
European Neurological Society (ENS)
www.ensinfo.com
European Study Group on Lysosomal Diseases (ESGLD)
www.esgld.org
Lysosomal Disease Network
www.lysosomaldiseasenetwork.org
Orphanet
www.orpha.net
National Organization for Rare Disorders (NORD)
www.rarediseases.org
Society for the Study of Inborn Errors of Metabolism (SSIEM)
www.ssiem.org
